Important Information on Primary Immunodeficiency and Autism
Letter published in the Schafer Report, Aug 06  (this is not me Ashley, another mom)
   
Since Monday, when I told my daughter's doctor about primary
immunodeficiency, they have scrambled to get us to an immunologist and an
infectious disease doctor. Suddenly the theory that she has suffered an
adverse event from a vaccine, that may have contributed to her condition,
currently diagnosed as autism, is credible. I did mention to various
doctors
that I knew there was something abnormal with my immune system, as I had
been hospitalized 23 times in the past 13 years for bacterial infections
requiring IV antibiotics to clear. This should have been a red flag for
PI.
     I have contacted the CDC's Immunization Safety Office, and the
only
valuable info they will give me is that individuals with primary
immunodeficiency should not receive live virus vaccinations. The following
is an email response I received yesterday from a MPH (master of public
health) within the CDC's immunization safety office. This is after I
mentioned that the only info she had given me refers to primary
immunodeficiency being a contraindication for live virus vaccination.
Notice
she does not give any info regarding live virus vaccines that are
currently
in the US recommended childhood vaccination schedule.
   
          If a child is immunocompromised, a live vaccine
   can result in serious illness or even death. Examples of
   illnesses that live vaccines can cause: Yellow fever
   vaccine poses a theoretical risk of encephalitis in an
   immunocompromised person.  Smallpox vaccine could cause
   disseminated vaccinia in an immunocompromised person and
   live polio vaccine (which is no longer in use in the US)
   has resulted in chronic progressive poliomyelitis in an
   immunodeficient child.
         For more detailed guidance you may want to seek
   out an immunology or infectious disease specialist since
   clinical situations are often unique.
   
   I am so frustrated, that after months of telling doctors about my
immune problems, my daughter's vaccine reaction, it took me bringing up
something backed from the CDC for them to say, "well, it is possible". If
she does in fact have PI, and should not have had even one single live
virus
injected into her, what then, can happen if she has 4 live viruses at
once?
What if chelation works by eliminating the source of immune interference
(mercury), allowing children to fight the persistent infection that
presents
itself as autism? Could this be why some children do not respond to
chelation? Is it because they have an inborn immune malfunction, such as
PI,
and cannot fight the persistent infection of the brain and csf by whatever
virus or bacteria has invaded it?   My daughter's primary physician was
not
too familiar with primary immunodeficiency, other than the most severe
forms, and was unaware that ALL children with primary immunodeficiency are
contraindicated for live virus vaccination. And I thought doctors lack of
knowledge of autism was disgraceful, this is just utterly disgusting.
     - Monica Bice     

Primary Immunodeficiency Side Bar

   The World Health Organization recognizes more than 150 primary
immune
diseases which affect as many as 50,000 people in the united States. This
includes Bruton's Disease, Common Variable Immune Deficiency, Selective
IgA
Deficiency, and Severe Combined Immune Deficiency (boy-in-the-bubble
disease). Some disorders, such as Selective IgA Deficiency can be quite
common, occurring as often as 1/400 individuals. Others, such as Severe
Combined Immune Deficiency, may be as rare as one individual affected per
million. It is thought that only 50% of those living with a form of
primary
immunodeficiency are currently diagnosed.

      The 10 Warning Signs of Primary Immune Deficiency*

   1. Eight or more new ear infections within a year.
   2. Two or more serious sinus infections within a year.
   3. Two or more months on antibiotics with little effect.
   4. Two or more pneumonias within a year.
   5. Failure of an infant to gain weight or grow normally.
   6. Recurrent deep abscesses in the skin or organs.
   7. Persistent thrush in mouth or on skin, after age one.
   8. Need for intravenous antibiotics to clear infections.
   9. Two or more deep-seated infections such as meningitis,
   10. A family history of primary immunodeficiency.
   *Courtesy of The Jeffrey Modell Foundation and the American Red
Cross.

More info can be found at:  www.immunedisease.com   www.primaryimmune.org
www.jmfworld.